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Journée mondiale des Maladies Rares

Event

Title:
Journée mondiale des Maladies Rares
When:
Thu, 28. February 2019
Category:
Evénements

Description

France has taken part in Rare Disease Day since its debut in 2008. Key events have included public gatherings in Paris, a book of rare disease patient stories, and the annual awareness raising campaign aboard national trains. There have also been educational programs launched in French public schools and smaller, regional events. 

France is a world leader in its policies for rare diseases. France is currently on its second national plan, ensuring quicker diagnosis of rare diseases and greater access to care.

More information here : https://www.rarediseaseday.org/country/fr/france